As I laid flat on my back for 6-hour following my kidney biopsy I had a lot of time to answer e-mails on my work BB and think about where my life has been. First of all I can appreciate being able to go to the restroom on my own. You can't get up after having this procedure do to hemorrhaging, so either you don't go or use a bedpan. I opted to wait :)
Over the past few days I have met people or had friends who stated 'you are so positive considering all that is going on with you both medically and personally, but you still maintain a glow and a upbeat attitude'. People with Lupus and Fibromyaglia must keep positive family and friends around you because life is too short to be 'flaring' because of negativity. I'm happy to be alive and only have a few 'bad' days. It could always be worst.
Always thank your higher power for what you have. I do it everyday.
Down2earthlupis
Showing posts with label Fibromyaglia. Show all posts
Showing posts with label Fibromyaglia. Show all posts
Monday, July 13, 2009
Sunday, July 5, 2009
Not as Young as I Use to Be
The girl's weekend to Vegas is almost over. It was a great time, but I couldn't hang with these 20- and 30-somethings. As I sat in a club at 5am this morning I began to reflect on my life and where it has come from and where it is going to. Back in my 20s and 30s it was no thing to hang out to all hours and get up the next day like it was nothing. Then came along Fibromyalgia and my world has changed.
Fibromyaglia forever changes your life. My disease seriously waxes and wains. One day I would be great, like a "normal" person, then the next I'm using my cane and popping pills to get through the day. I always get the "but you don't look sick" quote. Yes, I don't physically look sick, but inside I'm literally dying. I can be sitting in front of you, smiling and joking, but inside every muscle, trigger point and joint is screaming, "take some pain meds, take them NOW!"
One of my many therapist told me, "Toni this is your new normal, you can't do what you use to do, this is your new normal, get use to it". As a Fibromyaglia patient you mostly suck up the pain as much as you can until you can get into the comfort of your own home and just release.
As I sat in the club I've realized I must take care of me and only me right now in this time in my life. If my friends don't understand then they are not true friends. My life is a difficult one and changes with the wind, so I might not always be there as a friend because I must deal with my medical issues. So please, if you know someone with a chronic illness give them a break because you don't know their struggles or have walked in their shoes......
Down2earthlupie
Fibromyaglia forever changes your life. My disease seriously waxes and wains. One day I would be great, like a "normal" person, then the next I'm using my cane and popping pills to get through the day. I always get the "but you don't look sick" quote. Yes, I don't physically look sick, but inside I'm literally dying. I can be sitting in front of you, smiling and joking, but inside every muscle, trigger point and joint is screaming, "take some pain meds, take them NOW!"
One of my many therapist told me, "Toni this is your new normal, you can't do what you use to do, this is your new normal, get use to it". As a Fibromyaglia patient you mostly suck up the pain as much as you can until you can get into the comfort of your own home and just release.
As I sat in the club I've realized I must take care of me and only me right now in this time in my life. If my friends don't understand then they are not true friends. My life is a difficult one and changes with the wind, so I might not always be there as a friend because I must deal with my medical issues. So please, if you know someone with a chronic illness give them a break because you don't know their struggles or have walked in their shoes......
Down2earthlupie
Subscribe to:
Comments (Atom)
